Brave Emma from Laois tells her story of life with the skin condition EB #WATCH

Abbeyleix native Emma Fogarty is asking people Debra Ireland during National EB Awareness Week

Conor Ganly

Reporter:

Conor Ganly

Email:

news@leinsterexpress.ie

Laois actor Robert Sheehan Emma Fogarty  Debra Laois

Laois actor Robert Sheehan supports Emma Fogarty Debra Laois.

Beautiful and brave Laois woman Emma Fogarty from Abbeyleix has shared a intimate snapshot of her life with EB for in a video for Debra Ireland.

EB stands for epidermolysis bullosa, a painful skin condition whereby babies are born with skin as fragile as the wings of a butterfly.

October 23-29 is National EB Awareness Week and Debra Ireland, the charity that provides hope and support for EB patients and their families, is trying to fight the effects of this devastating disease by creating a 'butterfly effect' to raise both funds and awareness.

"We are asking people to help by picking up a Debra Ireland Butterfly Tattoo at any Applegreen service station and texting the word BUTTERFLY to 50300 to make a €4 donation," said Emma.

There is currently no cure and the only form of treatment is constant painful bandage changes to prevent infection. Because it's rare, fewer people have heard of it - that's why EB Awareness Week is so important.

Laois butterfly skin award winner appeals for help

(Text costs €4. DEBRA Ireland will receive a minimum of €3.25. Service Provider: LIKECHARITY. Helpline: 076 6805278)

Emma and mum Pat were thanked for welcoming the cameras into their home and to Leinster Rugby for their support in filming this piece for us.

Get your EB butterfly tattoo from any Applegreen for #EBAwarenessWeek. Text BUTTERFLY to 50300 to donate €4 to DEBRA. http://bit.ly/Donate_EBAW 

Pics: Courtesy of Richard Sheehy Photography