This Sunday evening, a special concert is being held to help raise funds for a special boy from Castletown.
Robbie was born into the Phelan family from Cuddagh, Castletown and his arrival brought great joy to his parents Martin and Claire and to his two sisters. From an early stage Robbie was attending hospital and at 11 months old after extensive tests Robbie was diagnosed with Mucopolysaccharidosis-type 1, better known as Hurlers Syndrome.
Hurlers Syndrome is a rare genetic disease that affects a person’s metabolism. This disease requires long term care.
In order for Robbie to receive the best possible care he is currently attending the Children’s University Hospital, Temple Street, Dublin, on a weekly basis to undergo Enzyme Replacement Treatment. This treatment adds a working form of the missing Lysosomal enzyme to his body.
Along with this treatment, Robbie will be required to travel to the Royal Children’s Hospital, Manchester, to undergo a Bone Marrow Transplant. It is expected he will stay in Manchester for 3 to 4 months. On his return from Manchester his treatment will be ongoing for the foreseeable future at Our Lady’s Children’s Hospital, Crumlin. This may be Robbie’s only chance of ever leading a normal life.
The committee members of the Robbie Phelan Fund are holding an event in The Racket Hall Roscrea this Sunday from 8.30pm. Entertainment on the night will be from Damien Bowe and The Vows with special guests Carmel Minogue, Billy Dollard, Valerie McGovern, Christy Phelan, Kieran Scott, Bernie Coss and many more. Tickets are €10, available from any committee member. Donations can also be made in any Bank of Ireland.