The good news continues for the family of Portlaoise baby, Ellen Barron McGee, who continues to improve after receiving life saving stem cell treatment.
Baby Ellen’s family recently received results of MRI scans that show no deterioration since the stem cell treatment earlier this year.
“It was the news we wanted to hear, the first round of treatment worked,” her dad, Tom Barron said.
“Ellen has a degenerative disease and it was going to continue to get worse. The relief when we got the results was amazing. I don’t know what it would have been like if the results had been the other way around.”
Ellen, who celebrated her first birthday on April 14, was diagnosed with the same Mitochondrial Disorder which took her brother’s life. Her twin sister Grace does not have this condition.
The family’s story has touched the hearts of people up and down the country and due to generous donations in Laois, Tom’s home town in Dublin and Lisa’s family in Dundalk, the family raised enough money for the first round of stem cell treatment and have since fundraised to get her the second round of treatment, whenever she may need it.
Tom explains how Ellen has been improving since their return from the Dominican Republic, where she had her stem cell treatment.
“She’s much stronger. She’s doing all the normal things that babies her age do at the minute, like teething. Physically she’s not where we would like her to be, but mentally she’s really coming along and her interaction has improved too,” he said.
Later this month, Tom and Lisa will have a three month update with Ellen’s doctors in America on her progress. They have been in regular contact with them since they returned home.
“We’ve been telling the doctors about her improvements and keeping them updated through emails every week. They will decide when Ellen needs her next round of treatment.
“They could tell us to come over straight away or they might think that she could wait another month. They decide and we just have to trust in them and see what happens,” he said.
Proceeds from a fundraising Barn Dance in the Square Bar in Portlaoise this Friday, June 15 will go towards the Baby Ellen Fund.