Cystic Fibrosis Ireland Chairperson, Bernie Priestley, and Interim CEO Sarah Tecklenborg .
Cystic Fibrosis Ireland are bringing their meet and greet series of events to Laois for people affected by cystic fibrosis (CF) and their families.
Cystic Fibrosis Ireland Chairperson, Bernie Priestley, and Interim CEO Sarah Tecklenborg will visit Portlaoise on June 20.
"We are asking what do our members need and we would love to meet as many of the CF Community in Ireland as possible to hear your thoughts, suggestions and opinions," said the organisers.
CFI was set up 61 years ago at a time when 40% of children with CF were not expected to reach secondary school age. Now, the outlook of a CF diagnosis is much more positive and the team at CFI are increasingly being asked about solutions to the current challenges of living life with CF. These include third level education options, fertility and family planning supports, work prospects, mortgages, pensions, menopause and more.
Despite the advances made, for many within the community the reality of living with this life-limiting, genetic condition remains an enormous challenge. The aim of these events is to ask everyone affected by CF “in the changing world of cystic fibrosis, how can we best support you?”
Registration is required for infection control purposes, and cross infection protocols will be in place at each event. An online meeting is also being facilitated for those who cannot or prefer not to join in person. The dates and locations of the meetings are as follows and CFI look forward to seeing as many of our community there as is possible.
The Laois event will take place in the Parish Centre in Portlaoise at 6.30pm on June 20.
Register your place today by emailing info@cfireland.ie.
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